Visit to the Doctor

I forgot to post this last week, so here it is…

I’m not sure if I posted anything about Bear’s last appointment at the Children’s hospital or not…the appointment was back in April. At the time, the doctor felt that he could safely reduce the level of maintenance medications that my son takes on a daily basis without serious risk to his health. So that’s what we did. Roughly six weeks later, Bear began coughing. Nothing serious…just ‘clearing his throat’ is what he would say. As the weeks passed I noticed that he was doing it more and more. I considered calling the doctor but since we had an appointment coming up I decided to wait it out.

Normally my concern is that he hasn’t put on any weight or hasn’t grown any. Every time we would go to the doctor he would only have put on a few ounces. It is nerve-wracking because he’s so skinny…anyway, I never considered that lowering his medication would have a two fold affect. Just the other day it was time to go back to the Children’s hospital for a check up. In the three months Bear was on the lower level of maintenance he grew 3 inches and put on 4 pounds. YES! Finally! Significant growth! WooHoo! This is going to be a great visit!! When the doctor came in to examine Deacon he asked if I had any concerns. I told him that I was a little concerned about the coughing as it seemed to be getting worse over the past two months. The doctor gave him a once over and sent Bear for a lung function test (which we do every time we’re there). Here’s a quick background on lung function…people who have Bear’s level of asthma have a ‘normal’ lung function of 80% or better (meaning that their lungs do not function at 100%), when we first started seeing this doctor, Bear’s lung function was 48%. Bear’s lung function topped out at 76%, not even in the ‘normal’ range. Okay, back to normal programming. I really hadn’t thought that the lower level of meds would have such an affect on Bear…his lung function tanked 13% (which is why he was coughing so much) in three months, which, of course, is unacceptable. I was wholly disappointed. I wanted so much for him to be able to stay on the lower level of meds…but with this result it just isn’t possible. So, he is now on the higher level of maintenance medications again. Which makes me sad. It’s not an additional pill, or inhaler…just higher dosages of the meds he’s already taking. I know, at least he’s going to be able to breathe…I get that, but this has been such a battle for so many years, I thought that we were finally getting close to the light at the end of the tunnel…

My Journey to NOT Being Diabetic II

Just the other day I blogged about Valentine's Day. In that post I mentioned that Husband asked me to buy a new outfit for our date, but what I neglected to mention is that the outfit I bought was ONE SIZE SMALLER than the clothes I've been buying lately. The pants one size smaller and the shirt...one size smaller!!! I was so stoked I couldn't stand it. Of course there was the part of me that said, "No, Sylvia...you are not one size smaller...the clothes are just cut bigger". Well, now I'm not sure that's the case. I went to the doctor yesterday for a follow up. I knew I had been losing weight but I just wasn't sure how much (you can read about it here). Yesterday I found out how much I had lost. I'll admit, I was nervous about getting on the scale at the doctor's office...I mean, what if my 'weight loss' had been in my head? What if the clothes I bought really had been cut 'bigger'?? I'm happy to announce that in roughly 3 months I've lost 9, count 'em N-I-N-E pounds!! Does this mean that I'm ready to sport an itsy bitsy tweeny weeny yellow polka dot bikini to the pool this year? Hell no! But what it does mean is that I'm on my way to a healthier life. I know that a nine pound weight loss is not substantial by any means (I still have roughly 60 pounds to lose) but it's a start. And it's enough of a start that I can buy smaller clothes...and who doesn't love buying smaller clothes??? I'm still taking the blood glucose medication (no big surprize there) and I'll probably be on it for a while, but I lost 9 pounds! I've lost the weight just be changing my eating habits. And I'm not necessarily eating differently than I was before...I'm just not eating as much as I was before. Now that I'm bonafiably losing weight, I'm motivated to start exercising. Maybe an itsy bitsy tweeny weeny yellow polka dot bikini is in my future for next summer...

My Journey to NOT Being Diabetic

No, I'm not diabetic...yet. I have a very strong family history of diabetes though. My mother takes a medication twice a day to lower her blood sugar when she eats and my father was insulin dependent. Clearly genetics are not on my side. I had a physical and blood work done about 2 months ago and the results came back that I am insulin resistant. Which means, I'm on the road to diabetes. So, the doctor prescribed a medication (the same one my mother takes) to help lower my blood sugar and hopefully stave off diabetes by jump starting my pancreas. Since that time I have also seen a nutritionist, and who knew that a donut can be better for you than muffin? Go figure. Anyway, I've been making better dietary decisions which has led to what is the beginning of weight loss. I'd like to say that I've been working out every day...but I haven't. I haven't worked out at all other than taking the dog out. Maybe it's all the stairs I've been climbing in the process. Regardless, I've started to lose weight. How much? I don't know. I'm not getting on a scale to find out either. What I do know is this...I've had a shirt that I could BARELY fit into (and when I say "BARELY", I mean I could barely get it over my head, and I surely could not sit comfortably in it) in my closet since the end of the summer. Today, I'm wearing that shirt to work...and I look good in it. My jeans...well, good news there too. I accidentally dried my jeans the other day and as we all know, that's the kiss of death for many of us when it comes to clothing our lower halves. Today, those jeans that I just knew I was going to have to rid of actually FIT! And we're not talking "kind of". We're actually talking about kind of almost too big! I have to keep yanking them up! How cool is that??? It seems strange to say, but I'm excited about the choices I'm making when it comes to eating. No, I'm not surviving on lettuce with a bit of black pepper on it. I'm eating just about everything I want, just not in the same amounts. I know eventually I'm going to have to exercise on a regular basis. It's not an option, and of course it's going to have to happen sooner than later...but for now, I'm content to lose weight by controlling what I eat. I don't know if all my efforts will all be in vain...I may end up a diabetic in the long run, there's no way to tell for sure. But at least I'm giving myself a fighting chance to outrun it for a while.

Some times it just gets to ya...

Bear has allergies; both food and outdoor (along with asthma, yeah...good times). We've been dealing with this since he was a baby (he's 9 now). People ask me how I do it. I read labels, have meeting with everyone who comes in contact with him, medications, trips to the ER...it never ends. I don't have a choice. I just do it. Somewhere along the way I must have learned to compartmentalize the roller coaster of emotion that goes along with a child that has medical issues. When I go into crisis management mode I'm calm and collected. I don't overreact when Bear has an asthma attack or an allergic reaction. I administer his meds and take appropriate actions. I remember thinking that it would get easier as he gets older...but it doesn't. It actually gets harder. When he was little it was easy, I controlled everything that he was exposed to. Now he's in the third grade and I don't get to control who stands next to him in the line for the bus. Just recently a child who ate a chocolate candy with nuts grabbed him by the arm...now this child, including the entire third grade, yes, it's that serious that the entire grade was educated about food allergies; knows that Bear can't be touched by someone who has eaten nuts. So, what happened? Thankfully, nothing because the nurse was notified immediately and she gave him some Benedryl to head off the reaction. I had no control over that child and what she did. It's frustrating to say the least. And for the most part, I deal with it (emotionally speaking)...but sometimes it's just too much. Once in a while I'll sit down and think about everything that Bear has been through and I'm reduced to tears. I don't cry for me, but for him. The stress that goes with having a child with issues like Bears is a mother's burden. I know it could always be worse; and I'm truly thankful that it's not...but he will have these issues for the rest of his life. Knowing that my child doesn't know what it's like to not be this way is sometimes heart breaking. Sometimes just finding out that someone I know has a child that has been diagnosed with food allergies is frustrating to me because I know what they're going up against. It's an incredibly long road...

When it rains it pours...

"When it rains it pours" is an understatement...it should read "When it rains it's going to rain enough that you should build an ark". Husband has been having blood pressure issues over the past several weeks. The doctor gave him some pretty powerful beta blockers (beta blockers reduce the power of the heart so it doesn't pump so hard and dilates veins and arteries to allow blood to flow easier). The meds have been working for the most part with the occasional rise in blood pressure. He's due to go back to the nephrologist in a couple of weeks. So, we've been dealing with that. For anyone reading this post that does not know, Bear has a pretty severe allergy to nuts...as in so severe that you can't touch him if you've been eating them. Last night was business as usual. Husband was at work, Teenager to soccer, Bear and Princess with me. I put Bear and Princess to bed around 9pm. At 11pm Husband burst through the bedroom door (he got home early from work) and says, "Syl, I need you; Bear's having an allergic reaction!". I immediately enter crisis management mode...Benedryl, check; Epinephrine pen, check; Nebulizer, check...into the oatmeal bath he goes. My son was covered in hives...by that I mean, he had a single hive that started two inches below his collar bone and covered his entire head and shoulders (If my sleep deprived, crisis management mode brain would have been capable of the coherent thought I would have taken a picture to post.). His face was swollen, his neck, ears...it was, by far, the most serious reaction that he's ever had. Hives covered his legs, arms, groin and back. When he was a baby and we first started dealing with this, I was told by the doctor that because his reaction was so severe from the initial episode, they would continue to get worse with each exposure. The doctor could not have been more accurate. So, I always tell people that anaphylactic shock is only one bite away for my son. He's never actually gone into anaphylactic shock but last night we got a pretty good glimpse at what it's going to look like when he does. While Husband changed his clothes and prepared for a possible trip to the ER, I gave Bear two teaspoons of Benedryl and stood watch over him. Husband asked "are we going?". I told him that I wanted to wait 30 minutes to give the Benedryl time to work, if it was going to work it would work in 30 minutes. So, Bear laid with his head on my lap, body covered with bright read hives, while I watched over him looking for signs of respiratory distress. It was the longest 30 minutes of my life. Thankfully the redness began to pass and things returned to "normal" (whatever that is...I've heard of it but have yet to experience it). I think it was somewhere around 2am when I turned things over to Husband. Some of my family and friends ask, "How do you do it?"...my response? "How do I not do it?". I hate to admit it, but I was scared. Possibly more scared for my son than I had ever been. Last night I really thought "This is it. Anaphylaxis." By the Grace of God, my child was spared a full blown episode of anaphylactic shock...but it's on the horizon...